Orphans with Special Needs

My Favorite Camp EVER

Posted on by kimnjed

Well, I’ll start out by apologizing for the radio silence. You haven’t heard from us recently, but for good reason, because we’ve just been so busy doing everything! A couple weeks ago dear friends from the US arrived to spend time with us and the team and last week our team put on a camp at Romaniv for our boys there. It was, as the title implied, my most favorite camp EVER. What can I say? It was perfection. The week was peaceful, deeply joyful, memorable, and just good. So so good.

It had been several years since we’d put on a day camp at the institution. I might be wrong, but I feel like the last time was in 2017…the summer before we took any of our boys out. That was a long time ago!! I’m thankful that God turned our focus back to our boys there because this camp was really needed- by them, and by us. Any time we can spend extended periods of time with our friends at Romaniv is good for them and for us. We learn more about the boys and they grow in their trust of us. Our love for them enlarges and deepens, and they have a whole week filled with love, hours of complete safety, one-on-one attention, and all the doting we can muster. It’s a win-win on many levels.

The theme of the camp was “The Five Senses” and our interns set up stations around the institution where our boys could go and experience the different senses. Each boy had his own volunteer and the goal was not that each boy would visit each station every day, but that the volunteer would pay attention to what the boy was interested in and be led by his interests. If a boy just wanted to stay all day at the music station and relax there, maybe even fall asleep, so be it! It was a very loose program where the individuality of each boy could be noticed and celebrated. I loved and appreciated that. We also had two volunteers who did a program each day for the nannies. They had tons of fun with them and I hope the nannies really felt special and seen.

Each day we had 25-28 people heading out to camp to bring our boys joy. Several new volunteers joined us and experienced life at Romaniv for the first time. They all did great! The vast majority of our volunteers were teens and it was just an absolute joy to see them delight in the boys. They could have been doing anything with their free summer days, but they chose to give a week to our precious friends and that was a real encouragement and injection of hope into our team. My mama heart was bursting as I watched our son Ezra lead the camp with the other interns, and our daughter, Havalah volunteer each day. New volunteers were partnered with Hava so they could learn the ropes of Romaniv and how to communicate with the boys. I so enjoyed watching her be an awesome example of love that others could follow. Our little Evie spent the week with us at Romaniv too and it was her first time to be there since she was a baby. She’d been begging us to go “to the boys” for at least a year, but I wasn’t sure she was ready. She’s super comfortable with our boys here and our friends with disabilities from the city, but our boys are her family. She’s never known life without them! All their noises, their unique movements, and quirks are normal to her. Romaniv is muuuuuuuuch different. But, we decided to give it a go. When we first arrived she was scared and started crying, but after a few minutes of reminding her that they were just like our boys at home and that she just needed to get to know them, all was great and she loved it. The boys were fascinated to see a little girl and she became quite a popular figure around camp. I don’t think she minded that one bit. 😉

On each day of camp, a few of the boys with their volunteers would go in the van to town for ice cream and a walk in the park. The boys behave so differently when they are out in town! It’s really fun to see who is curious, who is quiet, who gets excited…and we are very thankful to the Director of the institution for allowing us such freedom with the boys. He is a fairly new director, but we have known him for many years. He is supportive of our work and really gives us free rein to try new things. We had many years when that was not the case at Romaniv, so we will never take his trust for granted. What a gift!

The last day of camp was extra, extra special because we brought two of our horses! Now talk about a new sensory experience; that was the ultimate. Dajana and I loaded them up bright and early and staked out a place for them in a field near the institution. Then the team would bring us a few boys at a time and the boys would “meet” the horses at whatever level they were at. For some boys, just leaving the territory of the institution and being in a new place was enough sensory input to last the day, while some wanted to pet the horses, and some even rode! Our horse, Mishka, was an absolute rock star. She was so patient and could not have behaved better. Melody, her 11-month-old foal, just came along for the ride, so Mishka wouldn’t be alone. But she also behaved nicely and is shaping up to follow in her superstar mom’s footsteps. That was only the second time we’d taken any of the horses in the trailer and the first time we’d taken them soooo far, but they did amazing and it was a total success! We hope to do it again before the summer ends.

All in all, we considered this camp a huge success. Thank you to all of you who prayed for our time there. It was just wonderful, for the boys and for us. They ingrained themselves a little deeper into each of our hearts. They reminded us again why we are doing this work and inspired us to keep moving forward, to not grow weary, to not grow complacent, but to keep saying yes, pushing, and fighting till each and every one of them is free.

Your Questions Answered: The Boys’ Spiritual Lives

Posted on by kimnjed

On the last Tuesday of every month, we have an all-team meeting here on the Homestead. In those meetings, we cover a variety of topics. Sometimes we talk about new policies or protocols for our work, maybe a new development in one of the boys or something to do with their health that everyone needs to know; we celebrate accomplishments and milestones, say goodbye to team members who are leaving, or welcome new members to our tribe. Sometimes we just eat together or pray together, or discuss one of our values of dignity, love, and hope. The monthly gatherings are an important time and our boys are always right there in the middle of them. Their presence makes each team meeting a lively and loud event. 😀 We always have to agree on one team member who will be in charge of keeping Yaroslav in line as he kind of resents when all the attention in the room is not directed at him. Sasha loves to sit in the middle of the group and sing loudly- especially when it’s a quiet, more serious moment. Anton usually paces the halls and Boris bounces unbelievably high on the cushions of the couch eagerly awaiting whatever treat he sees lying on the counter for afterwards. It’s a circus, Y’all.

Anywayssss, today at our meeting Jed asked Ruslan to pray to start us off. We were outside around the fire pit and Ruslan proceeded to thank God for each and every single person around the circle- by name. It was a sweet moment and it warmed my heart to remember just how many people know and love Ruslan. He was once alone and now has a whole crowd of people who know him well and treasure him and his life. All of our boys are surrounded by that love and I really believe that they feel it. We have watched them come alive in our love over the years they’ve lived with us. God has done so much healing of their hearts, minds, and bodies. Sure, there is much more healing needed, but look how far they’ve come! I believe that they know they are loved and I’m so glad for that. Man, how I dream of that for all of our friends still stuck in Romaniv. I wonder how they would blossom and change if they were surrounded by a big ol’ family of people dedicated to their well-being and growth? I bet they would become almost unrecognizable- like our boys. I hope I get to see that in my lifetime.

While Ruslan was praying I was reminded of a question that was asked quite a long time ago that I never answered (sorry Katie!!!!). Katie asked about the boys’ spiritual lives. She wondered if they pray, if they go to church with us, and what level of spiritual understanding they have. Great question! Some aspects are difficult for me to answer, just because most of our boys are not verbal, but I can tell you what I know and what I see.

All of us house parents attend the same church in town and all of the boys attend church with us regularly. It has been quite a journey with our church body here. Whew. It has been a long journey of acceptance and growth. We have miles to go, but I feel like we’re in a fairly decent place right now. Almost all of our team members also attend the church and many of our volunteers also attend, so there are always many people present at church on Sundays who know and love our boys. The boys have learned over the years when they can “sing” and when they need to sit quietly. They mostly do really well at the whole Sunday service thing. Ruslan loves to sit in the very front row and sing his lungs out. He’s so loud! It’s amazing. Vova isn’t verbal, but he also “sings” a lot and quite loudly during the worship time. Yarik too! I love hearing their voices when everyone is singing together. I’m always struck by the miracle of having them there with us. It never ever gets old. The boys’ behavior during the preaching is hit or miss, but for the most part, they are fine. Everyone is used to them and their unique noises. The boys have grown a lot in their patience during the preaching time! Ruslan, Boris, and Yaroslav really, really seem to love going to church. For Yarik, it is definitely the highlight of his weekend and he starts to ask for it at least on Friday. He asks for it by holding his hand up to his mouth like a microphone and saying “Ah ya ya??” in a very specific tone. He loves it. Anton likes going to church because he knows he’ll get coffee afterward, Sasha doesn’t seem to care either way, and Vova is just happy to be anywhere with anyone. He is the happiest, smiliest ever. Remember when he used to bite everyone? Ha! Risperidone is a gift from God is all I have to say about that. But really, Vova does seem to enjoy the music at church quite a lot.

Every day, Monday through Friday, the boys have worship time together with the assistants at the duplex. That involves music either with a guitar or on YouTube. All our boys love music. Anton, specifically, is very sensitive to music. Sometimes a certain worship song will just hit him and you’ll see him sitting in his chair listening, with tears streaming down his face. It’s the sweetest thing. I think in those moments the Holy Spirit is just touching his heart and bringing healing. It’s beautiful.

We can’t know what the boys understand about God or what they know of him, but it does seem clear that they each have their own special relationship with him. Ruslan is the only one of our boys here who can speak in small sentences and really express his thoughts or feelings in a clear way. For sure our boys express many emotions all the time, but we have to interpret their meaning in the best way we know how. Ruslan is really the only one who can tell us sometimes what he is feeling or thinking about. Well, Yarik can do a bit of that too with gestures and minimal words, but to a lesser degree than Ruslan. With Anton, Vova, Sasha, and Boris we really have to look at body language, facial expressions, and behaviors to understand what might be happening inside their bodies and minds. But they all, except maybe Sasha, who is so much in his own world for so much of the time, seem to really respond to times of prayer, times of worship, and times of turning our attention to the things of God.

I’ve told this story before, but I think it’s relevant to share it again. When we first adopted Vlad (almost 9 years ago!) we took him to the US with us for several months to get him some medical care that he couldn’t get here. We took him to church with us and he enjoyed it, but we had no idea how much he understood about what was going on or about the things of God. He was fresh from the institution and wasn’t super verbal. He could talk in small, almost unintelligible sentences and acted like a little wild animal much of the time. Gosh, it’s amazing to think of how much he has changed!!! Anyway, the first time communion was served at church Vlad perked up because he was completely obsessed with food. Crackers? Juice? Yes, please! 😂 I didn’t want him to feel left out so I tried to explain as simply as I could what we were doing and what it meant. I told him “Vlad, we are drinking this juice and eating this cracker so we remember that Jesus died for us and that he loves us. Vlad, God loves you so much!” He quickly replied, with tears in his eyes (and Vlad NEVER cries), “I know. I know God loves me.”

I was blown away in that moment. How in the world did that child who had been abandoned at birth, then lived for 15 years in hell on earth; that child who had known neglect and abuse that most of us could never even fathom- how did he know that God loved him? How? It became clear to me that we have no idea how God reveals himself to our boys and others like them. Psalm 68:5-6 says “A father to the fatherless, a defender of widows, is God in his holy dwelling. God sets the lonely in families, he leads out the prisoners with singing…” When we started going to Romaniv back in the day those verses confounded me. How was God being a father to those abandoned boys? How was he caring for them? I just didn’t see it and was super confused about how to think about that promise of God. But then in that moment with Vlad, I realized that God was meeting with Vlad before we ever met him. God was fathering him in unseen ways and revealing himself to Vlad over the years. God was comforting him and defending his heart when he was abandoned by the world. It’s the only way Vlad could have known that God loved him. There’s just no other explanation. Several months ago Vlad got baptized at the church in the US he attends with my parents and we were able to watch it on the live stream. Vlad wanted to get baptized and the pastor spoke with him about it ahead of time to make sure he understood what it meant. When we watched the video it was obvious that Vlad met with God when he was baptized. He actually “whooped “with joy when he came up out of the water!

Our other boys seem to know God in a special way, like Vlad does. I see it in them and I’m thankful for it. We often tell them about God’s love for them. We pray for them and with them. They minister to us as we minister to them. The body of Christ is alive and well here on the Homestead. Praise God for that. ❤️

All About Sasha: Two Years Home!

Posted on by kimnjed

This week marks two years since Sasha joined the big Wide Awake/Dim Hidnosti family. I gotta say, it feels like much longer. A hundred lifetimes have passed since then and it seems like our Sashulya has been with us forever. Today Masha reminded our team that it was Sasha’s two year anniversary, and looking back at the photos of the day we brought him home- it’s like a dream. So much in our lives has changed since then.

Because Sasha was moved out of Romaniv to a different institution during COVID and visitors were not allowed, by the time the guardianship was in the approval process and Jed and I were allowed visitation, we hadn’t seen Sasha in more than a year. He acted like he didn’t know us at all and we really didn’t know him well anymore either. We had to start our relationship over completely and that was a very different situation than with all of our other boys whom we visited with often and felt we knew very well. I remember feeling so sad for Sasha because I knew he didn’t remember us well and was confused by all the changes. I desperately wanted him to know that all was well, that his life was about to change for the better, but his understanding of the whole situation was very limited. He was afraid of everything, all the time.

I remember the day we finally, after a million delays, brought him home. The whole team was so excited. We all breathed a big sigh of relief- our boy was home. Now his life could truly begin. In those first days Sasha would just crouch on the floor, making his body as small as possible. He wouldn’t respond to his name at all and didn’t want any physical contact. He was so much in his own little world that he would literally walk into walls. He was a shell of a person. Max and Morgan, an American couple who were living in the duplex as house parents, were the perfect landing spot for Sasha. They poured all their love and attention on him and he began to thrive. It was like we had a newborn baby with us and every little new thing Sasha did and every discovery he made was lovingly documented by our devoted team. It was a precious time.

Now, two years later, Sasha is a tall, almost-17-year-old with a super loud voice and a very strong will. 😆 Gone is our scared little boy. We’ve got a full-blown teenager on our hands now and I think he’s going to be an actual giant. He’s huge and it doesn’t look like he’s going to stop growing anytime soon. Sasha often seems lost in his own world, especially when he has a water bottle or one of his favorite toys in his hands, but when he wants relationship he is the most loving, affectionate cuddle bug there ever was. His smile absolutely lights up the room and everyone who knows him falls in love with him. He’s not afraid to show us what he thinks by batting us away or even falling onto the floor when he doesn’t want to go somewhere. He’s heavy and I think he knows it. 😂 But we choose to recognize that he is communicating, showing us his likes and dislikes and I’ll take that any day over a scared little boy crouching in the corner.

Sasha loves music, especially old Ukrainian and Soviet children’s songs. He is musical and even though he doesn’t speak, he can sing the words to a couple of his favorite songs. Sasha likes water (if it’s warm) and riding in the car- but only if he gets to sit by the window! He likes to kick balls and play in our little ball pit. He’s very tactile and when he’s in the mood he really loves hugs.

Sasha’s diagnoses are Autism Spectrum Disorder and Epilepsy. He also has microcephaly and Raynaud’s Syndrome. Over this past year or so we have struggled to get his seizures under control. The doctors think this is mainly because he is growing at such a rate that we haven’t been able to keep the medication at a therapeutic level. Just last week he had an overnight EEG and we are now waiting to hear the results. Overall, his health is good, we just need to him to slow down on this growing for a bit!

Oleg and Masha are the house parents in the duplex now and they live with Sasha and Anton. It’s so cool because years ago when Masha was an intern at the institution, Sasha was one of the boys on her caseload. Now she gets to live with him like a mama. God’s plans are the best.

We love our Sashulya deeply and are mega thankful he is a part of our family. I’m just so glad he isn’t afraid anymore. I’m so happy to know that every single day he is surrounded by love and is safe. Sasha is precious and our big Wide Awake/Dim Hidnosti family adores him. Happy 2 years, Buddy!

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What’s Up at Romaniv?

Posted on by kimnjed

It’s been a long time since I’ve talked about Romaniv in this space! Sadly, that’s because it’s been so long since we’ve been able to regularly spend time there with our boys.

Every year, usually sometime during January and February, Romaniv shuts itself off to visitors. They call it “Quarantine”. They were doing quarantine long before it became a worldwide “thing”. 😉 It makes sense that they would do that each year. Jan/Feb is usually the peak of flu season and they want to protect the boys from people coming in with all the winter germs. So, this year, before COVID was even a thought in Ukraine, Romaniv was already in quarantine.

Then…COVID.

Romaniv was quarantined for many many months. Finally in the summer they told us we could come, but we didn’t feel good about it. We really wanted to make sure we didn’t unnecessarily expose the boys to the virus, and we just felt it wasn’t time. We decided to wait.

Then came the fall, and the realization that waiting is not going to do much good. As much as we hate to admit it, COVID isn’t going away anytime soon, and life must go on. Yes, going to visit could expose the boys to the virus, but not going is not a viable option either. Our boys need to see their friends. They need to be held and loved and safe for a few hours. There are risks to their health if we go, and risks to their mental/emotional health if we stay away. After much prayerful consideration, we felt the green light to begin visiting again.

For three weeks we tried to arrange a meeting with the staff so that we could begin visits, and by the time they were ready to meet, their region had a spike in COVID cases and they closed for another quarantine. NOOO!

All that to say, we still haven’t been able to visit. But, we are waiting (not so) patiently, and as soon as quarantine is lifted, we’ll be there.

One big development that happened in the late summer is that all the boys at Romaniv under the age of 18 were transferred out, to a different institution in Teteriv, and several new adults were transferred in to Romaniv. Those changes came about so the institution could be renamed and reclassified. It has always been called “Romaniv Children’s Home”, even though there were very few actual children there. Out of more than 80 boys, only 5 were legal minors at the time of the proposed name change. Once those 5 were moved out, the institution could be renamed and reclassified. So, “technically” it’s not an orphanage anymore, but we all know that changes nothing. It is still a dark place full of precious souls who desperately need to know the love of family, so a name change makes no difference to us.

We have yet to learn if the move to Teteriv has been beneficial or detrimental to the 5 young ones who were transferred. It’s hard to imagine things could be much worse than they were at Romaniv, although we know that any change is stressful for our boys- even if it’s good change. We don’t have any relationship with the administration there, so we have not attempted a visit yet. Also, all the orphanages are currently quarantined. Sasha, the boy who we hope will be first to live in the duplex was among the 5 that were transferred. Soon Jed will have legal guardianship of him, and then he will have a legal right to visit him at Teteriv. We are hopeful that will help open doors for us to see the other 4 of our boys who were transferred along with Sasha. That reminds me that I need to write a post about Sasha! I’ll do it next week. 🙂

So, while the doors to Romaniv are closed to us, we will keep on keepin’ on here. Our team will keep loving our boys who are already free, and our builders will keep working hard to create a place of beauty for the ones who will soon know freedom.

Would you please join us in praying for our boys at Romaniv and at Teteriv? Pray that God would be so very near to them and that he would bring peace to their hearts. Pray for their safety and health, and that the COVID situation will improve in Ukraine, so that it will be safe for us to visit them again soon.

I promise to keep you updated whenever there is an update to give!

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The First Time

Posted on by kimnjed

Her heart pounded in her chest and her stomach churned as the van turned onto the gravel road lined with trees.

Two weeks earlier she and he had left their four small children and flew all the way across the world to visit that place. They had heard the stories and knew deep in their souls that they were supposed to DO something about the injustices being done in that place and others like it.

She had cried countless tears over the past year as she washed dishes and changed diapers and swept the floor in suburban America. Her heart was broken for the helpless ones who were trapped in their suffering with no future, no hope. Though she had never met them, in her heart she already loved them. Her mama heart ached to hold them and make everything better.

The van pulled up to a gate and stopped. They stepped out of the van and instantly she heard them. She heard the sounds of the ones she had dreamed of and longed to know. The yelling, the moaning, the cries of excitement intensified- visitors had arrived!

She and he walked hand in hand down the sidewalk of the institution and the noises became louder. She saw curious faces peeking through windows and her heart skipped a beat. Would her heart deny her? Would her body betray her? Would all their preparations and prayers leave them reeling in the depth of their naivety? What if they met the boys face to face and wanted to run away from them instead of embracing them? What if this was not the YES they had hoped it would be?

But then a door opened and she was among them, punched in the gut by the smells and the sounds; all five senses assaulted in an instant.

As she and he were swarmed by faces and hands and bodies, fear melted away and her heart became alive. In that moment she realized that her soul had been longing for those souls in front of her. Her hands were covered in their saliva and their scent, and yet she couldn’t contain the joy and the “rightness” she felt in that moment. She glanced in his direction and their eyes met. He gave a slight nod, yes, he felt it too.

This was what they were put on the earth to do. These were their people. This was their path.

______________

That first day at Romaniv will forever burn in my memory. I met my boys that day. I met my future that day. I loved them instantly and fiercely that day and I promised myself I would fight endlessly for them. It was a naive love, most definitely, but it was true.

Mama Bear awoke that day. Circumstances and disappointments have made her cower in her cave these last months, afraid to love them like she did before. Living with them was harder than she imagined it would be. In the midst of their overwhelming trauma, her love has not been enough. Their hearts are like bottomless pits that can never be filled. No amount of her love will ever be enough. So she cowers in her cave, afraid to give more, afraid to bring more boys to freedom because of the damage, pain and disappointment that is sure to follow.

But she can not fight for them from her cave. She can not fight for them and remain safe from pain. To love them is to feel their pain and to walk with them through it, even if that walk takes forever.

I am their Mama and I will not be afraid.