Wide Awake International | Wide Awake Family

The Heart of Deinstitutionalization

From Jed:

“You can take the girl out of the trailer park, but you can’t take the trailer park out of the girl.”

Whenever Kim does something silly I like to remind her of her roots.

It’s all light-hearted but the adage makes me think of what it means to work toward the deinstitutionalization of people with disabilities in Ukraine… or anywhere for that matter.

Our dream is to help our friends find the love of a family and the support of their community as they work toward becoming fully human.

We have worked for many years, creating a beautiful space for them to flourish. They now have gardens, classes, coffee with friends, house parents, therapy, church community, fun time, work time, horses, yoga, their own bedrooms, holidays, birthdays, and countless other experiences. What full lives our dear friends now live, together with us in community.

As idyllic as this all sounds, to make this dream a reality we have a team of assistants, house parents, office staff, builders, teachers, cleaners, volunteers, managers, accountants… The organization of all this requires HR manuals, team meetings, performance evaluations, process improvement plans, goal setting, shift scheduling, training, retraining… you get the idea.

The most effective way to manage all of these details is to make institutional decisions so everyone is on the same page, they know what is expected of them, and they can perform their job functions effectively, timely, and measurably. Ok, this is sounding a bit too institutional for an organization focused on deinstitutionalization.

So, how do we keep from falling into the trap of systematizing the lives of our friends with disabilities, because it is more stable, easier to manage, and makes life all-around predictable? How do we not just create mini-institutions?

The truth: sometimes we do start making our friends’ lives more institutional. We catch ourselves bringing our hands to work, but leaving our hearts at home.

Boris is constantly teaching me to slow down and be present with him. Yes, he wants his needs met. But he also wants relationship and I can get so busy solving problems that I forget Boris is a person, longing for relationship, reaching out with whatever communication tools he has, “Know me, help me… give me a #$%^ cookie!”

When I treat Boris like a problem to be solved, my decisions and my relationship with him become institutional. I’ve done all this work to get him out of an institution and then I re-institutionalize him with my heart.

I use an analogy with my team that I learned from a dear friend years ago. He would talk about sending our stunt double to work, so we wouldn’t have to bring our real selves in that day. The stunt double takes all the hits, and never gets hurt, so we can keep on acting like everything is ok.

But with our kind of work, we don’t have the luxury of sending in the stunt double. This a work of the heart, from the heart, and each moment with our friends must be processed through our hearts. Now, we use a lot of thinking and strategizing, but that is only so we can be full-hearted and completely available when we are with our friends.

Another way we work towards keeping our organization leaning forward, open, and leading with the heart is to analyze what we are doing, with our vision in mind. “Why are we here?” When we build our job descriptions and work policies, we try to have a “skeleton of rules” that supports the body (our vision). No extra bones (rules) in the skeleton.

This year we are working on a community covenant that will represent the heart of what we are trying to accomplish and the ways we all agree to work together to further our vision of deinstitutionalization.

For analyzing our work, we use a team-wide process called Appreciative Inquiry. I’ve used this approach for more than 15 years now in my professional work. Instead of going with the old classic, problem-solving model, we sit back and ask ourselves, “What is working well here?” “How do we do more of what we do well and spend less time on the areas where we struggle?” “How do we apply the ways we do things well to all areas of our work?”

I like this approach because it uses everyone’s experience and perspective as we look ahead. Our work is cross-cultural and ultimately effective if our local staff is leading the analysis, development, and implementation processes.

Another way we seek to avoid recreating mini-institutions is by remaining small. Small is beautiful. There are more than 100,000 people with disabilities institutionalized throughout Ukraine. It would be foolish to think we can solve this enormous social issue.

But, we can be a sign of hope, a candle in the darkness, a piece of the puzzle as Ukrainians change the future reality for people with disabilities in their country. By remaining small we can stay close to the heart of what we are trying to accomplish- the deinstitutionalization of people with disabilities. Not just removing them from a physical institution, but fighting to keep our hearts at the forefront of this work, remaining open to the cry of each of our boys to know and be known, to love and be loved.

Over the next three years, we plan to take four more people into our care and complete the final building on the homestead. After that, all our growth will be through partnerships and supporting the replication of this model of deinstitutionalization and family-centered care.

By remaining small, we can put our energy into helping other organizations and people to deinstitutionalize in their communities.

We strive to keep a simple approach that has the support of essential rules needed to function, with our focus on the heart of each person. We are creating a place where our values are not just applied to the work with our boys, but also to our coworkers and community members. Everyone is worthy of Dignity, Love, and Hope.

Staying close to this vision and not getting too big for a britches is how we plan to not only take more of our friends out of institutions but also to keep from re-institutionalizing them with our model of care.

Now, while I can’t get Kim to stop making tater-tot casseroles and listening to Joe Diffie, we haven’t been driving by that double-wide for sale down the road for a few weeks… so there’s hope. (I’m joking!)

A Defining Year

Posted on February 23, 2023 by kimnjed

Tomorrow, unbelievably, marks one year since Russia’s full-scale invasion of Ukraine. It feels like only yesterday, but also feels like a lifetime has passed since we lived in a land of peace. There has been war in Ukraine since 2014 when Russia invaded the Eastern borders and stole Crimea, but our town remained at peace. We didn’t feel the war in our everyday life. Here on our little Homestead we lived in peace, without fear. Oh, what beautiful, peaceful lives we led. We took so much for granted and didn’t even realize it. Now we are forever changed. This year showed us a lot about ourselves, about our work, about our team and our boys, and about our world. We will never be the same.

Our newsletter should go out tomorrow and I know the anniversary of the war deserves attention, but I just know tomorrow I won’t be in a mindset to deeply reflect. It’s just too painful. I figured I’d get as many of the tears out today as possible. So bear with me as I rip off the barely healing scab on my heart and reflect on this past year.

I sometimes wonder what I did last year on February 23rd, the last day of peace. How did I fill my time? What was on my mind? What plans did I have for the next few days, the next few months? I can’t even remember. When we woke up on February 24th to bombs dropping and our house shaking our old life and plans flew out the window. We had entered a new reality where only the war existed and the rest of the world was as far away as Jupiter. Anytime I think about those first few weeks of war my stomach hurts and tears flow. All the feelings come rushing back: shock, fear, outrage, confusion…How do we live in a time of war? How do we parent our children through this? How do we lead our team through this? How do we keep our children and our boys safe? What is the right thing to do? Do we stay or do we go? If we go we will be physically safe, but how can we leave the men on our team and our boys at Romaniv? If we stay we could die. What if our children die because we stayed- when we could have left? The internal dialogue and conflict were unrelenting. There is no guidebook to living through a war. You just live, one day at a time.

Then there is the time we spent as refugees in Germany. That was a whole lifetime in itself that contains its own pain. To be honest, I still can’t really talk with you about that time. For me, personally, it was the most agonizing, most difficult time of my life. I have no idea which Kim the people in Germany saw…but it wasn’t me. I was not myself and the whole time is like a blur. I know someday I’ll be able to share with you more about that time, but I honestly am just not ready. I’m thankful our bodies were safe and I’m thankful for the people that helped us. I truly am. I have a handful of really beautiful moments there that I will carry with me always. But in general, it was just super rough, for me personally. I know it’s visible in the Youtube videos from that time. I don’t plan to ever go back and watch those. I’m aware I look like death. 😂 Care for the refugee, Friends. They are carrying such deep pain.

Since we returned home to Ukraine in July we have all learned to live in the new normal. We have adapted to life in a country at war and I’m consistently amazed at the resilience of the human spirit. We really are amazingly adaptable creatures. Sometimes I’m even a little concerned at how normal certain things have become that should never be normal for anyone. But, God has given us, our team, and our boys the grace to keep moving forward, despite the war raging around us. We are so thankful for his protection, his grace, and his love for us and this work that he has created.

I have heard people refer to this year as “The Year Russia stole from Ukraine” and boy, they have definitely stolen a lot. They’ve stolen thousands of innocent lives. The death toll isn’t even countable yet in places like Mariupol where Russian troops still hold the city. I’ve read estimates of at least 20,000 civilian deaths in that city alone. One source even estimates as many as 87,000 deaths in the city that a year ago today had a thriving population of over 425,000. We may never know how many lives were lost in that once beautiful city on the sea. The Russians have stolen the childhood of an entire generation. Ukrainian children have seen unimaginable horrors this past year. They spend sometimes hours a day in their schools’ bomb shelters and know waaaaaay too much about different weapons and their capabilities. They know true fear like I never knew as a child- or even as an adult! My heart hurts, thinking of the ways my children have had to grow up this past year. It shouldn’t be this way. Russia has stolen some of the best and brightest from Ukraine. Millions have fled the country and the longer they are away in Europe or the US the less likely it is that they will ever return. Some of the brightest of us have fled, the bravest of us have died, and the rest are left to pick up the pieces. It is a heartbreaking reality.

But- despite all that has been stolen and despite the circumstances that thwart at every turn, we absolutely refuse to let Russia steal our hope. We will not be led by fear. We will not back down. We will not hold back. God is our portion, our refuge, our strength, our hope. The dreams he put in our hearts he will see to fruition- he is even doing that now! Right now, as I am writing this post, Jed is in Romaniv at a committee meeting where they will grant him legal guardianship of Yaroslav and Vova. Today our boys will be ours forever. God is still moving, still making a way and as long as he goes, we will follow.

This year our faith has been tested and defined. Where do we find our hope? Who do we turn to when we are afraid? Do we believe God’s promises to us and our boys? Where does our strength come from? Is our joy reliant on our circumstances? I have failed a million times this past year. I have put my hope in people. I have not chosen joy when things looked bleak. I have relied on my own strength. I have doubted God and his faithfulness. But despite all that, he keeps pulling me back. He keeps showing his love and faithfulness to us, our team, and our boys. He provides all that we need at every turn. He is always there, waiting, loving us first. No matter what may come tomorrow, we will hope in him.

Thank you for loving us and for remembering Ukraine. Victory will come, I’m certain of it, but until that moment we will continue to put one foot in front of the other, saying YES to the next thing God asks of us. Thank you for joining us along the journey. It’s not over yet.

BeLOVE[d]

Processing…

Success! You're on the list.

Whoops! There was an error and we couldn't process your subscription. Please reload the page and try again.

On Going Home

Posted on June 30, 2022 by kimnjed

Why would refugees decide to return home to a war zone? It’s a good question that I myself would have probably asked just a year ago. Now we are those refugees returning home to a war zone and it feels like the most obvious thing to do. It feels like the thing that makes sense. It feels right. It’s time. Yes, we and our team have decided to return to our home in Ukraine. Our Board of Directors is in agreement and have voted to that end.

There are so many reasons why people who have fled from war choose to return and I can’t pretend to know the mind and heart of every refugee. I can only speak for myself and the people closest to me. We have rehashed this a bazillion and one times and there are many reasons why we could stay in Germany, but there are so many more reasons why we should go home. We are blessed beyond measure that we even have a home to which we can return. When we left I wasn’t sure it would be the case. But as of today, our home still stands and awaits our return. We’ve explained here on the blog and in recent Youtube videos why life here in Germany has become unsustainable for our group, but that is not the only reason we have decided to leave. I know that returning isn’t the right decision for everyone, but it is the right decision for us, so I thought I would try to explain it to you.

Regardless of War, Home is Home. We have lived in Ukraine for coming up on nine years. Our children consider Ukraine their home in every sense of the word. As a family, we don’t really belong in the US anymore. Jed and I can feel more at home there than our kids because we both lived there for more than 30 years, but still, every time we return it feels more and more foreign. We moved to Ukraine when Obama was still president! So much has changed in the US, but also so much has changed in us. We are not the same people who left Portland, OR with 9 suitcases all those years ago. (For one thing, now Jed has less hair and I have gray hair…😅)

Our little piece of the world, the Homestead, is the only place on earth where our family truly feels at home. We have lived a hundred lives in Ukraine, brought Ukrainians into our family, our kids call themselves Ukrainians, yet we know we will never truly be Ukrainian. Those closest to us, our team, don’t see us as “The Americans”. We are simply their family. But I know other Ukrainians don’t see us that way. There have been so many times here in Germany when I have been out and about in town and have heard Ukrainians around me. I always wanted to walk up to them, to talk with them, to feel that closeness with them, but the few times I tried they were only confused. Why was this American acting like she was one of them? Like she understood their plight? We will never be Ukrainians, but we don’t feel much like Americans. Yes, I know, heaven is our home. But here on earth, our plot of land in our village in Ukraine is our home, and we desperately want to be there again. It is where we are known, where we are understood, and where we are accepted as one of the family. We simply want to be home.

We Want to Stand With Our Country. I know there is such a thing as compassion fatigue and that it is real. There is only so much one person can actively care about day in and day out. I know the attention span of the world is incredibly short and Ukraine’s moment in the spotlight has just about run its course. But while the rest of the world can move along to the next big thing, while most people have the luxury of putting their phone down or simply turning off the tv and forgetting for a while, we don’t have that luxury. Every hour of every day we are thinking about Ukraine and the war. It is all-consuming. But we live in a country where life moves on like normal. That is no slam on Germany! Of course, life moves on. My life has always moved on regardless of wars happening in other countries. I get it. But now our lives don’t get to move on. We go through the motions and watch the seasons change, but our hearts and minds are stuck on February 24th- the day when the world fell apart. We don’t want to be in a world where life goes on like normal and we are mute spectators with our feet stuck in the muddy mess of things. We want to be in a place where we are standing strong in solidarity with others. We want to be in a place where people understand. We want to show up for our country.

The Work Must Continue. The vision of Wide Awake International is to bring hope, love, and dignity to people with disabilities in Ukraine. That vision is lived out through deinstitutionalization. Guys, we have to get back to work. The need for this work didn’t stop because Putin decided to invade. The plight of people with disabilities who are wasting away in institutions hasn’t changed or gone away simply because it has become less safe for us to go to them. The reality is actually quite the opposite. Our boys at Romaniv and others like them need rescuing now more than ever. Our work has always been a frontline work and now is a frontline time. We must not retreat. Ukraine needs helpers and our team is full of them. There is no way for us to continue our mission while in Germany. Yes, we brought Yaroslav and Vova out of Romaniv to us in Germany, but that is the limit of what we can do from here. We simply must get back to work in Ukraine. There is no other way. This is hands-on, boots-on-the-ground work, and our boys can not wait alone for the war to end. We must go to them. While the eyes of the world are on Ukraine and while more people are becoming disabled each day we have to be in there, helping, advising, lending experience. We feel the urgency in our bones. This is what we were created for and the work must go on.

Our Goal is Not to Stay Alive. A dear friend reminded me recently of an important truth: “Our greatest goal in life is not just to stay alive.” If our goal is to keep our bodies alive, then we will all eventually fail because every one of us will eventually die. Our goal is not just to stay alive, but to LIVE. Yes, here in Germany our bodies are safe and they are alive. But in a way, we are not truly living. And while we are here not doing the things we are passionate about it feels like we are slowly withering away. Of course, there have been many beautiful, precious, wonderful moments in Germany. We have lived here, but we have not lived to the fullest. It’s like we’ve been stuck in a waiting room. Waiting for the next meal or the next news story or the next distraction. We have been busy caring for our boys, but we know we can do so much more. Our spirits are so much more alive when we are fulfilling our mission, when we are creating something beautiful together, when there is redemption and light moving into dark places. Of course, it goes without saying that we don’t desire death. I don’t want to die anytime soon and I don’t want that for any of my loved ones. But keeping our bodies alive is not the highest goal. Because at one time or another we will all die. In the meantime, let us be doing the things we love.

“If we are all going to be destroyed by an atomic bomb, let that bomb when it comes find us doing sensible and human things —praying, working, teaching, reading, listening to music, bathing the children, playing tennis, chatting to our friends over a pint and a game of darts—not huddled together like frightened sheep and thinking about bombs. They may break our bodies (any microbe can do that) but they need not dominate our minds.”

– C.S. Lewis Present Concerns

We would really appreciate so much your prayers as we make the move back to Ukraine. So many of you absolutely flooded the heavens with prayers as we were leaving Ukraine and since we’ve been in Germany. We are very, very thankful. Thank you for standing behind us. I know not all of you will understand this decision to leave physical safety and return to Ukraine, but I hope you will stick with us on the journey home. We are excited to get back to work in Ukraine. Your encouragement and support mean a lot to us, even though we can’t always reply to each one of you individually. This community is truly the best.

If you would like more details about our decision-making process, please feel free to check out these notes from our board chairman. For those of you who like details, it might help you understand how we and our board reached this decision.

Love to you, dear friends. Thank you for trusting us and loving us through this time.

Processing…

Success! You're on the list.

Whoops! There was an error and we couldn't process your subscription. Please reload the page and try again.

We Are Safe

Posted on February 16, 2022 by kimnjed

Dear Friends,
Thank you for all your love and care for us during this uncertain time. We are still in Ukraine, on the Homestead, and we are safe. There have been rumors that some kind of invasion could happen today, but so far all is well. Assistants are with the boys, I took the kids to school, and am now sitting down with coffee to write to you. It feels almost like a normal morning, except Jed is on the phone right now with Ruslan planning the route for picking up all of our families in the city, if there were to be an invasion. And the kids’ school wrote that they are stepping up emergency drills with the kids. Sooooo…almost normal? 🤷‍♀️

We are watching the news very carefully and have made plans for every scenario we can think of. What will we do if we lose cell service? What will we do if we lose internet? What will we do if public transportation stops running? What will we do if there are Russian troops actually in our city? We have done our best to prepare, and now all we can do is live our lives and see what happens.

✅ On Monday we bought :
50kg of buckwheat
10kg of sugar
50kg of rice
20L of oil
50kg of oats
60kg of carrots
120kg of potatoes
40kg of onions
60kg of beets
5kg of garlic
Salt
So we’re all set to feed our crew of 40ish, should we all need to hunker down here in the village.

✅ Yesterday we filled all the vehicles with diesel and have plenty of fuel on reserve that Ruslan has been buying over this past month.

✅ Yesterday we finally purchased 3 generators (one for each home) and tomorrow they will be installed.

✅ Today we will hopefully hear that Sasha’s passport is ready. It’s past the date when it should be ready, so we hope to hear good news today on that front.

✅ All important documents for everyone are compiled and scanned onto thumb drives as well.

We are as ready as we can be, and I have to tell you we feel at peace. We really don’t feel afraid. We know we are exactly where we are supposed to be, and we will stay here as long as God has us here. We aren’t being hyper-spiritual about it, but also, we are not going to panic. Moving our huge group is too much of an undertaking to do it just for rumors. We will wait and see if it is actually necessary to leave before we make any big moves. We are committed to being here. Ukraine is our home and we are committed to our Wide Awake Family.

We wanted to thank everyone who has reached out recently and shown their love and support for us and our team. We feel absolutely loved and cared for by you. Many of you have asked how you can help and our main answer has been “pray and donate so we don’t have to worry about money, should an emergency arrive”. You have stepped up in amazing ways. In the past month our partner churches in the Pacific Northwest, plus many generous individuals have donated $20,000 specifically towards helping the Homestead become more energy independent. Thank you thank you thank you!! We are blown away by your giving hearts. Having the generators in our possession brings us a lot of peace of mind.

Grant is still coming and is scheduled to arrive next week. We have plans for how to get to him if the airport is inaccessible or if commercial flights are not allowed to fly in Ukrainian airspace. He told us “I’ll walk to you guys if I have to.” 😆 We are eagerly awaiting his arrival and are thankful for his commitment to this work.

Please pray for Vasya. He is the husband of our team member, Nina. He is stationed on the front in Eastern Ukraine. He has been stationed there off and on since the war began in 2014. But of course, now it feels quite a bit more stressful for Nina to have him there. Pray for Vasya’s safety and for Nina’s heart to have peace. Thank you.

President Zelenskyy made a great speech on Monday and declared today, the possible day of attack, as the “Day of Unity”. Ukrainian flags will fly and everyone is encouraged to show their support of Ukrainian sovereignty. I encourage you to read his speech and dare you not to fall in love with Ukraine even more.

We will let you know if our situation changes. Please continue to pray and reach out. Never apologize for writing to us and checking in! We are not annoyed, we are only thankful and we feel the love. BeLOVE[d]

❤️ 🇺🇦 ❤️

Processing…

Success! You're on the list.

Whoops! There was an error and we couldn't process your subscription. Please reload the page and try again.

How Are the Boys?

Posted on December 9, 2021 by kimnjed

It’s been a while since I wrote an update about all our boys, right? I tried valiantly, for a while, to do the prayer team updates once a month, but I got a little burned out on that. It just ended up being too much. So…it kinda fizzled. Sorry about that. 🤷‍♀️ I’ll make it up to you now with an update about each of the boys you love so much. As you’ll see below, they are just doing really, really well. We are thankful that right now all of our boys are happy, healthy, and thriving.

Vlad. Can you believe our Vlad is 21 years old now? He’s officially an adult, so he’s working hard at learning how an adult should behave and taking on more adult responsibilities. Vlad has taken on the responsibility of caring for the goats along with the chickens and I have to admit that I get a good chuckle watching him try to wrangle them into the yard at night. It is a sight to behold and probably the only time you will ever see Vlad angry at any living being. 😂 He still goes to work at the electrical shop 3 days a week for about 4 hours and it’s going “okay”. There are good days, and not so good days. Vlad has the most wonderful, kind, patient boss, but it’s still a challenge for him to stay focused and motivated at work without mom or dad there to keep him in line 🤦‍♀️. I hope he can keep his job, but he’s going to need to rise up to the challenge if he wants to keep working. We’re also searching for the balance of what kind of work can challenge Vlad so he can grow, but also work in which he can be successful. It’s all one big experiment.

Physically, Vlad is doing great. We decided to wait until next winter to being working on his orthodontics back in the US. Right now he is needs a lot of support from us and it just doesn’t seem like the right time for him to be so far away. We’ll see! He is generally happy and thriving. The other day he brought me his Christmas list that he wrote out himself. It was written in a mixture of Ukrainian and English and it just made me smile. He is such a joy and we are thankful that he is our son.

Boris. Our sweet Bmo is doing so great!! He really is growing and changing right now. He has started to communicate more and more of his needs and desires and I think that brings him joy- when we understand him. He mostly communicates by bringing us the thing he wants (like a cup when he wants a drink, or his blanket when he wants to sleep), but he also will occasionally use cards. It’s encouraging to see him trying to communicate. He’s also using the toilet more frequently with great success. We are all super happy about that!

Boris is still med-free and self-harm-free. We stopped giving him meds at the beginning of last year and I’m pretty sure he hasn’t hit himself even once. I’m still in awe of that miracle. I never dreamed he would have a life without hurting himself. He has been laughing a lot lately and is just generally really happy and content. The past couple of weeks he has been vocalizing more too! It’s so strange to hear consonant sounds coming from his mouth. What if someday he speaks!? 🤩

Ruslan. Rus is still living with Luda and her son, Nazar, in an apartment in town and it is great. Luda is really the perfect person for Ruslan and they do so well together. She gives him a lot of independence and he is thriving in that. He is growing and maturing, emotionally, and is all around happy! Of course he still has his moments when trauma rears its ugly head, but he is growing in that. He is better able to handle unexpected changes in plans and negative emotions. The team has been working hard on that with him.

Ruslan loves meeting friends for coffee. When he goes to a cafe he always orders a “cappuccinko”. 😂 He is so super social and I love watching him at church, how he walks up and greets all the different people he knows. Such a man! I’m really proud of Ruslan. He is making great strides and brings us a lot of joy and laughter. In the past my relationship with him has gone through some difficulties, but God has brought a lot of healing to my heart and I’m so thankful that I am in a place right now where I can just delight in Ruslan. He is a precious gift to our family and our team. 🥰

Anton. Antoshka is talking up a storm! In the past, Anton has really only spoken we have asked him to, when was repeating after us, or when he was angry. But right now he is in a season of exploding vocabulary! He is talking on his own accord and saying things we have never heard him say before. He’s singing a lot too, which usually is a sign with him that all is well. He’s in a really good place these days.

Back in the late summer, early fall he was really stressed and had lost some weight. He was looking pretty skinny and just not healthy, in general. But, over the last two months he has gained 12 pounds! Anton really shows us his emotional well-being through his body- his skin coloring, his weight. So a chubby Anton is a happy Anton. And that makes the rest of us happy too. 🥰 Anton is taking more “responsibility” for Sasha and will even take things away from him if he knows Sasha is holding something he’s not allowed to have. The other day I was in the kitchen at the duplex and I heard Anton yell “Sashaaaaaaa!!!” I ran to the bathroom and Sasha was trying to climb into the (empty) bathtub while Anton was trying to stop him. Big brother was watching out for Sasha. 😊 This is huge because in the past Anton has really only ever seemed to care about Anton. The fact that he is watching Sasha and interacting with him like that is actually a big step for Anton. I’m proud. ❤️

Sasha. Oh Sasha. He just brings us all so much joy! I remember back when we first decided to pursue guardianship of Sasha, we felt the Lord speak to us that he would bring joy to us all, and that has totally been true. His transition to family life has been the easiest of all the boys- by a mile. He was just ready! He is the cuddliest, sweetest man-child (😆) ever. Often Sasha is in content in his own world, but as time goes by he is more and more willing to engage. He responds to his name now (sometimes) and will follow some simple commands. Sasha loves to cuddle, sing, run, spin in circles, play with water bottles, and grab everything in sight that he’s not supposed to have. 😉 He also really loves to eat, but I think that goes without saying. He is a 15 year old boy, after all and he’s growing like a weed. He’s about to grow out of all of his pants and has gained about 25lbs. since he came home to us in May. 😱

Sasha has epilepsy and when he came to us he was on two medications: one he took twice a day and one he took three times a day. Now, six months later, he takes only one of those medications, twice a day. Woot! The neurologist is happy with the changes in Sasha’s brain activity and now that he is on less medication he is more interactive and alert throughout the day. Sleep is sometimes a bit hit or miss, but mostly fine. We are just so incredibly thankful that Sasha is in our family and we all adore him. He is a gift.

Thanks to everyone who prays for our boys. It is such a joy to share how they are developing and changing. Sometimes it feels like we struggle with the same things over and over, month after month, year after year, (because we do…😜) but when I sit down and write out an update like this I marvel at how much they really have grown! These are not little children we are talking about! Besides Sasha, these are grown men, yet they still change and grow. They have so much to overcome every single day, but they do it. They allow us into their worlds and they let us love them. And then they love us back. I know I’ve said it a bazillion times, but I just can’t even begin to imagine our lives without our boys. They are God’s gifts to us.

Processing…

Success! You're on the list.

Whoops! There was an error and we couldn't process your subscription. Please reload the page and try again.