We’re coming up on 8 months with Anton and Ruslan and I feel like we’re slowly starting to come up for air. Caring for our guys is still pretty much all-consuming, but we have gotten in to a bit of a rhythm, and things are looking up!
Sometimes it feels like their progress is so minuscule, but then we look back and remember things we had to do a few months ago just to keep the peace around here and we see how far the guys have come. Very far!
Anton. Six months ago we were barely sleeping because Anton was up all hours of the night wandering the halls. I remember we used to have to turn off all the water to the house and unscrew all the downstairs lightbulbs before we went to bed every night because Anton would get up and try to take a bath at 3 in the morning, or shriek and hoot and holler at 2am so that we would get him up and feed him. We had to remove all options in order for him to be able to turn his brain off enough to rest and fall asleep. At one point Jed was sleeping on a couch in front of his door to remove the option of nighttime wanderings. Those were the days…yikes.
Now I can happily report that Anton goes to bed easily and doesn’t get up until at least 6:30 every morning. (knock on a biiiiiiig ol’ piece of wood 🙂 ) His sleep success is thanks to a strict evening routine that we dare not stray from, and blessed medication. The combo of the two saved our lives.
He’s saying a lot of words, and more and more often he says them at the appropriate times! He used to only really speak when he was angry, but now that’s not always the case. There are so many words in there and sometimes he’ll shock us with a “See you tomorrow!” (in Ukrainian of course) or something like that.
Anton gets stressed pretty easily, and when he doesn’t feel good, physically, he gets really worked up. In times of stress he is aggressive toward others, so that is a big bummer. I hate those times because I know he is just repeating what he’s seen his whole life and it’s not the real Anton. When he is in an aggressive mood it just becomes a matter of keeping him separate from everyone else and that is exhausting. I hope and pray that someday Anton will be able to express his emotions in ways that are less painful to others. We are doing all we can to help him learn a new way.
When Anton feels good and is at ease he is so joyful, sweet and fun-loving. He loves big bear hugs, dancing, toy cars and fidget-spinners. He enjoys stirring things in the kitchen and will gladly eat anything and everything you put in front of him. He has started to say “I love you” on occasion and this week he said “Mama” for the first time. Melt my heart.
Ruslan. To be honest, it’s hard for me to write about Ruslan because I’m unsure how much to share. Whenever I share about our boys I want to respect their dignity and respect their privacy. It’s so important for me not to overshare their personal struggles. At the same time, I always want to be honest about this process. It does none of us any good for me to pretend all is unicorns and rainbows when they so clearly are not. This is stinkin’ hard work for us, our team, and our boys every.single.day. Most of all for our boys. Learning to become a human after 20+ years of living like an animal is not an easy process to go through. They need our empathy and our compassion, but they also need our strength. They need to have a standard to rise to, expectations to meet. They need to know we believe in them and we want more for them because we love them!
Ruslan’s trauma presents itself as high anxiety and a need to be in control of everything. At Romaniv his world was small. The stressors were crazy HUGE, but there were few of them. His main priority there was keeping himself safe and keeping himself fed. Here in the real world, the wider world, there are many, many things outside of his control. There are so many more things for him to obsess about and be anxious about. If it’s not one thing it’s another. He wants desperately to control his environment, but when you live in a house with 10 other people you just can’t control every single detail. That is outrageously hard for Ruslan. Sometimes it seems like it’s only getting harder, only getting worse, but he has actually made some great strides in the past few months. A few months ago he was was having daily meltdowns and those really only happen on rare occasions now. You can see him ramping up for a meltdown, and then most of the time he can wind himself down. Not always, but most of the time. I’m so thankful for that!
When Ruslan is relaxed and at peace he is hilarious. He has a great sense of humor and a compassionate heart. He really loves Evie and is mostly gentle with her. He loves to sing, and worship time at church is his most favorite thing EVER. The anxiety ridden Ruslan who acts out in fear holds back the real Ruslan. The anxious Ruslan is also extremely hard to live with. It breaks my heart because I want things to be different. So, we will continue to fight for him. We will fight to get him all the help we can so that he can live his life to the fullest.
We have waited a bit to see how things would play out with a highly structured day and several months of safety and now we have an accurate baseline for Ruslan. We are ready to seek out psychiatric care for our guy and see how we can best help him move forward. If you would pray with us for wisdom in this we would really appreciate it.
Health. As far as medical stuff goes for both guys, we’ve been slowly but surely getting things taken care of. Fridays have become our “medical day”, so Kenny and I try to tackle the different medical appointments on Fridays. We’re focused on dental stuff right now and that’s super fun since Kenny and I both HATE going to the dentist. I’m not sure how much moral support we provide, but we do our best. Hehe. Anton has one problematic tooth that should be fixed next week and Ruslan has a whole mouthful of problems. I’m not sure he’ll have any teeth left when we get finished. Poor guy. 🙁 I’m guessing we’ll be exploring the world of dentures or implants in the near future. Anton has some physical symptoms that I don’t have answers for yet, but all in all I think they are both in pretty good health at the moment. Step by step we’re getting there!
I have to say that there is no way we could do any of this without our amazing team. Kenny and Oleg are with us Monday through Friday, bathing our guys, shaving them, taking them on bike rides, teaching them how to make tea, keeping them safe, talking them off the ledge, teaching them how to be men, loving them, comforting them, supporting us and all in all just being awesome. This really would be impossible without their help. We would have burned out months ago.
Masha, Masha, and Lesya are also absolutely essential to the success of this home. “Harry Potter Masha” 😉 comes to our home three times a week. She plans and organizes the guys’ schedule for the week and is learning to implement the plans that Olya, our wonderful OT, recommends. Masha’s work makes it so that we aren’t just spinning our wheels with the guys, but we are hopefully moving toward specific developmental goals. “Second Masha” and Lesya each come once a week and provide great additional support to our guys and the rest of the team. I love our team and can’t express how thankful I am that God brought each of them to our family.
So, there’s a bit of an update on our two newest family members. If you have any questions about Anton or Ruslan, or the process of deinstitutionalization don’t hesitate to ask! My hope and dream for writing this out is that someone reading it will also feel called to this deep, difficult, and beautiful work. We need help and I know God will call the right people to join us. I also write this so that those of you who pray will know better how to pray for our family and our team.
To all of you who pray, support, encourage and love us from afar, thank you! We can’t tell you how much we need it and appreciate it. Thank you for partnering with us on this journey. We couldn’t do it without you!