How Are the Boys?

It’s been a while since I wrote an update about all our boys, right? I tried valiantly, for a while, to do the prayer team updates once a month, but I got a little burned out on that. It just ended up being too much. So…it kinda fizzled. Sorry about that. 🤷‍♀️ I’ll make it up to you now with an update about each of the boys you love so much. As you’ll see below, they are just doing really, really well. We are thankful that right now all of our boys are happy, healthy, and thriving.

Vlad. Can you believe our Vlad is 21 years old now? He’s officially an adult, so he’s working hard at learning how an adult should behave and taking on more adult responsibilities. Vlad has taken on the responsibility of caring for the goats along with the chickens and I have to admit that I get a good chuckle watching him try to wrangle them into the yard at night. It is a sight to behold and probably the only time you will ever see Vlad angry at any living being. 😂 He still goes to work at the electrical shop 3 days a week for about 4 hours and it’s going “okay”. There are good days, and not so good days. Vlad has the most wonderful, kind, patient boss, but it’s still a challenge for him to stay focused and motivated at work without mom or dad there to keep him in line 🤦‍♀️. I hope he can keep his job, but he’s going to need to rise up to the challenge if he wants to keep working. We’re also searching for the balance of what kind of work can challenge Vlad so he can grow, but also work in which he can be successful. It’s all one big experiment.

Physically, Vlad is doing great. We decided to wait until next winter to being working on his orthodontics back in the US. Right now he is needs a lot of support from us and it just doesn’t seem like the right time for him to be so far away. We’ll see! He is generally happy and thriving. The other day he brought me his Christmas list that he wrote out himself. It was written in a mixture of Ukrainian and English and it just made me smile. He is such a joy and we are thankful that he is our son.

Boris. Our sweet Bmo is doing so great!! He really is growing and changing right now. He has started to communicate more and more of his needs and desires and I think that brings him joy- when we understand him. He mostly communicates by bringing us the thing he wants (like a cup when he wants a drink, or his blanket when he wants to sleep), but he also will occasionally use cards. It’s encouraging to see him trying to communicate. He’s also using the toilet more frequently with great success. We are all super happy about that!

Boris is still med-free and self-harm-free. We stopped giving him meds at the beginning of last year and I’m pretty sure he hasn’t hit himself even once. I’m still in awe of that miracle. I never dreamed he would have a life without hurting himself. He has been laughing a lot lately and is just generally really happy and content. The past couple of weeks he has been vocalizing more too! It’s so strange to hear consonant sounds coming from his mouth. What if someday he speaks!? 🤩

Ruslan. Rus is still living with Luda and her son, Nazar, in an apartment in town and it is great. Luda is really the perfect person for Ruslan and they do so well together. She gives him a lot of independence and he is thriving in that. He is growing and maturing, emotionally, and is all around happy! Of course he still has his moments when trauma rears its ugly head, but he is growing in that. He is better able to handle unexpected changes in plans and negative emotions. The team has been working hard on that with him.

Ruslan loves meeting friends for coffee. When he goes to a cafe he always orders a “cappuccinko”. 😂 He is so super social and I love watching him at church, how he walks up and greets all the different people he knows. Such a man! I’m really proud of Ruslan. He is making great strides and brings us a lot of joy and laughter. In the past my relationship with him has gone through some difficulties, but God has brought a lot of healing to my heart and I’m so thankful that I am in a place right now where I can just delight in Ruslan. He is a precious gift to our family and our team. 🥰

Anton. Antoshka is talking up a storm! In the past, Anton has really only spoken we have asked him to, when was repeating after us, or when he was angry. But right now he is in a season of exploding vocabulary! He is talking on his own accord and saying things we have never heard him say before. He’s singing a lot too, which usually is a sign with him that all is well. He’s in a really good place these days.

Back in the late summer, early fall he was really stressed and had lost some weight. He was looking pretty skinny and just not healthy, in general. But, over the last two months he has gained 12 pounds! Anton really shows us his emotional well-being through his body- his skin coloring, his weight. So a chubby Anton is a happy Anton. And that makes the rest of us happy too. 🥰 Anton is taking more “responsibility” for Sasha and will even take things away from him if he knows Sasha is holding something he’s not allowed to have. The other day I was in the kitchen at the duplex and I heard Anton yell “Sashaaaaaaa!!!” I ran to the bathroom and Sasha was trying to climb into the (empty) bathtub while Anton was trying to stop him. Big brother was watching out for Sasha. 😊 This is huge because in the past Anton has really only ever seemed to care about Anton. The fact that he is watching Sasha and interacting with him like that is actually a big step for Anton. I’m proud. ❤️

Sasha. Oh Sasha. He just brings us all so much joy! I remember back when we first decided to pursue guardianship of Sasha, we felt the Lord speak to us that he would bring joy to us all, and that has totally been true. His transition to family life has been the easiest of all the boys- by a mile. He was just ready! He is the cuddliest, sweetest man-child (😆) ever. Often Sasha is in content in his own world, but as time goes by he is more and more willing to engage. He responds to his name now (sometimes) and will follow some simple commands. Sasha loves to cuddle, sing, run, spin in circles, play with water bottles, and grab everything in sight that he’s not supposed to have. 😉 He also really loves to eat, but I think that goes without saying. He is a 15 year old boy, after all and he’s growing like a weed. He’s about to grow out of all of his pants and has gained about 25lbs. since he came home to us in May. 😱

Sasha has epilepsy and when he came to us he was on two medications: one he took twice a day and one he took three times a day. Now, six months later, he takes only one of those medications, twice a day. Woot! The neurologist is happy with the changes in Sasha’s brain activity and now that he is on less medication he is more interactive and alert throughout the day. Sleep is sometimes a bit hit or miss, but mostly fine. We are just so incredibly thankful that Sasha is in our family and we all adore him. He is a gift.

Thanks to everyone who prays for our boys. It is such a joy to share how they are developing and changing. Sometimes it feels like we struggle with the same things over and over, month after month, year after year, (because we do…😜) but when I sit down and write out an update like this I marvel at how much they really have grown! These are not little children we are talking about! Besides Sasha, these are grown men, yet they still change and grow. They have so much to overcome every single day, but they do it. They allow us into their worlds and they let us love them. And then they love us back. I know I’ve said it a bazillion times, but I just can’t even begin to imagine our lives without our boys. They are God’s gifts to us.

BeLOVE[d]

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Birthdays Comin’ Out Our Ears 🥳

I’m tellin’ you what, we have been celebrating like crazy around here! Birthday after birthday after birthday. The past month or so has been a birthday explosion, and I’m not a weighing type person, but if I were, I’m certain the scales would indicate just how much we’ve partied. 😂

Celebrations around here are sweet. They don’t call for many ingredients. Simplicity is at the core. All you need for a Wide Awake celebration is some tasty baked treats (gluten and lactose free for our Anton), fruit, tea with sugar, a speaker, and some music. Decorations are nice, but the treats and the dancing are the main focus of every celebration. Our boys and our team love a good dance party- the louder the music, the better.

I love love love seeing our boys celebrated by so many people. I love seeing the gifts our team members buy for the boys because it just shows how well each of them are known. Our team knows just the thing that each of them will like. For Anton it’s anything that can spin and anything he can eat. For Bmo it’s mainly just candy. Haha. They are known and they are seen as individuals. That is no small thing.

“Every child, every person needs to know that they are a source of joy; every child, every person, needs to be celebrated. Only when all of our weaknesses are accepted as part of our humanity can our negative, broken self-images be transformed.” -Jean Vanier

How to Fly a Family of 9 Overseas During a Pandemic: Johnson Style

Having flown across the sea a number of times with any number of children, I’d like to think of myself as a veteran child/luggage/passport wrangler. I’m not easily phased by the prospect of 24 hours of travel with multiple dependents. At this point in life, traveling with less than 4 children is basically like flying solo, in my book. And if Jed is with me and we can tag-team? Oh baby, Amazing Race has nothing on us. We are unstoppable.

Now, flying during a pandemic with this many dependents, two of whom (I’m looking at you Bmo and Evie) will keep masks on for approximately 3 seconds before sending them shooting across the room, is pushing our skills to the next level. If it wasn’t for the fact that we haven’t been back to the US as a family for 2.5 years, and have in-person-Wide-Awake-business that needs to be done, I’m not sure we would attempt it. Am I nervous? Maybe a little. But, you see, our whole married life has been preparing us for this. When we were newlyweds we were taking teams of teenagers on short-term trips to work with Jed’s parents in Kosova. Flying with 15 teens and a 3 month old Addy during our second year of marriage was good prep for our current situation. 😉

You’d think with all my gloating confidence I would be uber-prepared with laminated checklists and labeled passports…but, I have to confess that that is not the case. Jed and I are more “fly by the seat of our pants and pray everything gets done in time” type people. Somehow we manage to check everything off the lists (which we scribble on the back of receipts and lose 5 times before we actually check everything off), but I’m not sure our method is for everyone.

A few of the passports. I guess I should go find the others…

One week Till Go-Time

  • Decide to host a Thanksgiving feast for 25 people. Be sure to include everything on the menu and don’t cut any corners! Erect a tent outside to keep the feast pandemic-friendly. Make everything from scratch, as all the conveniences can’t be found in your host country. Spend 2 days in your kitchen totally destroying the deep-cleaning you did the week before while you were thinking you were “ahead of the game”.
  • Contact your brother to ask to borrow his van while in the US. You know, since you’ll be in the US for almost two months, it might be good to have a vehicle to drive…(face palm).
  • Check travel requirements and the lockdown situation in the states you are headed to. Search the internet for COVID testing sites that don’t require a physicians order. Make sure Boris can still enter the US on his visa and keep your fingers crossed that the world stays intact for just a few more days till you all cross the border together.

5 Days Till Go-Time

  • Stress about how you’ll keep a mask on Bmo and Evie for 20 hours. Lay awake at all hours of the night thinking about that instead of sleeping. You wouldn’t want to go into the travels too rested! Also, don’t forget to worry about Anton and Ruslan and if they’ll understand that you’re coming back. Sleep is for the weak.
  • Stock up on groceries for the next several days so you won’t be running to the store constantly and can focus on preparing for the trip. Make sure to forget TP and milk and at least three other items, just to insure you do have to, in fact, run to the store constantly.

4 Days Till Go-Time

  • Get all the suitcases out of the old house on the property where they’ve been stored for the past couple of years. Make sure to open them outside, as last time you opened one inside the house a mouse ran out and emotionally scarred you for life. You’ll never trust a suitcase again. Also, they’re covered in dust and nastiness. Employ teenage sons to give them a thorough cleaning. Argue with Jed about how many suitcases you will actually require for a family of 9 to spend 7 weeks away from home. Jed argues you can get by with just a couple of carry-ons- or maybe just a backpack for each? You argue that you would like to be able to change your clothes more than once during the 7 weeks and ask for checked bags. Jed considers…you drop it for the time being. (But you know you’ll win…hehe)
  • Check travel requirements and the lockdown situation in the states you are headed to, again. Double check that Bmo will still be able to enter the country (assuming he’ll wear a mask long enough to be allowed on the plane…)

3 Days Till Go-Time

  • You have your team over for the day to work and plan for your absence. You drink a lot of coffee and make another batch of homemade egg nog…because this day is a wash anyway. Nothing is getting done. The day might as well be tasty if it’s not going to be productive.

2 Days Till Go-Time

  • You venture, tentatively, into the pits of despair, aka dumpsters, that are your children’s bedrooms and sift through empty chip bags and wet towels and Seth “science experiments” to search for dirty clothes. I mean, if you’re going to fight with Jed over checked bags, you might need actual clothes to fill them. You then come to your senses and remember that your children are capable human beings and they, are in fact, the ones who should be sniffing through the piles of clothes on their floors. You come up out of the fog of teenage boy smells and instruct your children to do their laundry, if they intend on spending their time in the US clothed.
  • After much debate, you convince your 10 year-old son that it really is better to clean up the “science experiments” before travel. Yes, it could be fun to see what grows in them over the next 7 weeks, but it would be less fun to come home to a room full of mold. You assist him in cleaning his room. You want to poke your eyes out.
  • The house sitters come over for instructions. You share all the idiosyncrasies of your home and about how to care for your approx. 527 animals. When you get to the part about which drawers in the kitchen are prone to mice and which aren’t, you see their eyes grow wide and wonder if you should just stay home after all. On Instruction #182 their eyes kind of glaze over and you all just agree to text each other if questions come up. You never realized your house had so many idiosyncrasies!
  • You do laundry non-stop while the toddler destroys the house.

1 Day Till Go-Time

  • I guess it’s time to pack. You really do try to fit it all in the agreed amount of luggage, but there’s just so.many.people. The teenage boys fetch a couple more suitcases out of storage and Jed dies a little on the inside.
  • Run to the kids’ school to sign them out for the next couple of months. Oops. You actually should have done that last week. Better late than never!
  • More laundry, because it never ends.
  • You remember your children still need to eat today, but you didn’t really plan for that. Hmmm…haphazardly feed your children whatever is left in the kitchen: pickles, cheese, oatmeal, eggs? Never mind. You’re on your own, kids. Mom’s up to her eyeballs in laundry. Candy for lunch? Whatevs. You’ve got bigger fish to fry.
  • Clean and pack and wash and launder and pick-up and clean and pack and wash till the wee hours of the morning. At some point Jed runs to the store (again) for snacks for the plane. You heard they won’t feed you much on the plane these days, but teenagers and Bmos are hungry all the time, so you better stock up.
  • Pack the passports and check them 20 times to make sure you have 9 of them. Obsessively check travel sites to make sure Bmo will still be able to enter the US. Read up on airport rules and pray everyone wakes up healthy and ready to mask up.
  • Pack the suitcases in the van in the dark of night. Jed remarks more than a few times on the amount of luggage. You remind him that this isn’t a backpacking trip, and yes, you really do need more than one pair of shoes for a 7 week trip. You call truce and drink some egg nog.

Go-Time

  • Wake the troops in the middle of the night and check the passports 15 more times before groggily heading out the door.
  • Pat yourselves on the back for successfully exiting your life for the foreseeable future. You’re sure you forgot something, but you’re headed to the US! Anything can be replaced. -Except passports. You better check them just a couple more times…

See you on the other side! We’ll let you know how the Bmo-in-a-mask-for-20-hours goes down. If anything, it’ll make for good writing material. 🙂

An Idea I’m Excited About :)

A couple days ago I got the best message from an American couple that live in Kyiv. I met them briefly on a trip to Ukraine before we moved here. Throughout the years they have followed the work and sent encouraging notes here and there to let us know that they pray for us. (Those kinds of notes are the best notes, by the way)

Last winter when it all hit the fan and we had to immediately remove Anton from our house, they let me know that they had been praying for Anton every night, and would continue to do so. In that terrible time, it was such a giant encouragement to hear that they were praying faithfully for our precious guy.

That brings us to a couple of days ago when I got another message from the couple letting us know that through all these months they have continued to pray for Anton every night. I was so shocked to read that! In that moment I was able to let them know that actually, Anton has really been struggling the past couple of weeks. They were thankful to know so they could understand better how to pray for him. It made me wish I had been sharing more about Anton with them all along.

Then I had an idea!

As we’ve been planning our transition off of social media, we have been trying to think of ways for the Wide Awake community to stay engaged. I love the “back and forth” we have on social media and I really love that so many of you feel that you truly “know” our boys. That is a beautiful thing, to know our boys have cheerleaders in their corner that rejoice with us in every little victory and cry with us when times are tough. I don’t want to lose that part of community. It is an important piece at the heart of this work: to know and be known.

I would love to gather like-minded people together into groups that would celebrate, cheer on, pray for, and share the beauty of each of our boys. I’m thinking we need a “Team Boris”, “Team Ruslan”, “Team Anton” and “Team Vlad”. Then as more boys are added to our Wide Awake Family, we can gather teams for them as well. We probably need to gather a “Team Sasha” too, seeing as how Jed will soon be his guardian. Woot!

What does it mean to join a team?

  • We will send each team member a postcard of their boy that they can put on their fridge as a daily reminder of the precious life across the ocean.
  • I will email the teams each month with an update on their boy, prayer points and fun videos and pictures.
  • If we’re going through a rough patch I can let the team know and they can pray, support and encourage.
  • If there is a big gain for one of our boys, the team will know and be able to celebrate with us. I know it would mean a lot to our team here in Ukraine to hear that support and love from others for the boys that mean so much to them.
  • I even had an idea for a live chat with the team and their boy every so often…now that sounds fun!
  • Edited to add: I will still give regular updates about all the boys on the blog and in the weekly emails. The “teams” are more about targeted info about that specific boy. You can totally join more than one team!

What do you think? Wanna join a team? We would absolutely love for you to join us in caring for our boys in this way.

How to join?

  • Send me a message and let me know which team you would like to join.
  • Make sure I have your email address so I can send you the monthly updates.
  • If you would like us to send you a postcard, please send us your mailing address as well.

I’m so excited to see what comes of this. This idea was prompted because you all have shown so much love for our boys over the years. Thank you for loving them and for seeing them. Thank you for looking past the diagnoses and seeing the people. I can’t wait to keep sharing them with you and I really can’t wait till we have even more boys to introduce!

Wide Awake is leaving social media on Monday, October 12. But that doesn’t have to be goodbye! We are sending weekly email digests, so all the goodness you usually see on social media lands right in your inbox. Sign up below to get the weekly emails. I promise not to spam you. 🙂

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“International B-Mo Day”

Today marks ONE WHOLE YEAR since our beloved Boris was taken out of Romaniv and joined our family. ONE YEAR! It feels like it has flown by, but it also feels like he’s been with us for a lot longer.

Learning to love and care for Boris has been the most character-defining time in my life. I’ve said it before and I’ll say it till the cows come home: caring for the weak and broken is a fabulous way to expose your own weaknesses and areas of brokenness. I thought I was a pretty okay person until B-Mo joined us. He has taught me the extreme selfishness in my heart and the extreme impatience as well. I will be forever grateful to him for this. Not that those battles have been won, but at least now I can see that the battles are there and the areas where I am exposed.

We had no idea what to expect when we took Boris home last December 18th. I remember that he knew the day was special. As soon as I entered the Isolation hall to get him dressed he grabbed my hand and scooted toward the door like “Let’s get outta here!” Now that I know him and I know how smart he is, of course he knew the day was special! I’m sure he heard nannies and others talking about it for weeks in advance. Sweet boy. Boris is no dummy.

I remember how when we pulled up to the driveway he was afraid to get out of the van. Jed eventually had to pick him up and carry him into the house. I remember how after he ate he tried to grab all the food he could off the counter. I remember how we had to feed him and how he was so impatient because he was used to food being shoved down his throat at such an amazing speed, he didn’t know how to eat slowly.

I remember how in those first days he was quiet and only interested in sitting on the couch alone.

I remember the first several months when Evie was born and Boris’ honeymoon period was over and how we (mostly I) cried every day. “How are we going to do this? Why did we do this? I can’t live like this forever…” I’m going to be painfully honest here. There were many days last spring when I had major feelings of regret. Not regret like “Let’s take him back to Romaniv”, but regret like “I regret that I chose to do this with my life.” Seriously. In those days, Boris had his good moments, but they were few and far between. He was mostly just unhappy and disregulated and demanding. Nothing was good enough. Nothing made him happy (except for riding in the car”. His self-harming was at an all time high and the only saving grace was bedtime, because thank God, Boris has always stayed in his bed at night. Every day I woke with dread. It was a dark time.

And now? Now those moments seem like ancient history. Now? Now I love my Boris/B-Mo/Beemchick/Borya/Borka/Beemo-my-Weemo like I never thought possible. I adore him. He blesses my heart and he is a gift to our family. With his small, broken body he is teaching us thankfulness and contentment and perseverance. But don’t be deceived, he isn’t perfect! He still loves to punch himself in the head whenever he gets the chance. He loves to throw fits at the dinner table and will throw his bowl and cup on the floor any chance he gets. He will pee his pants if he’s mad and all that jazz, but guess what? I’m not anything close to perfect either. I’m impatient and short and so so selfish. The difference is now, now we know each other. Boris is known. He is known and he knows us. We get each other and we know what to expect from each other. He has become a part of us- an irreplaceable member of our family, adored by all. After a lifetime of being treated like an animal, Boris is becoming human.

In Romaniv Boris was basically silent. Now I can say with confidence that Boris is THE LOUDEST member of our family. Oh.my.word. He has a lot to say and and is determined every day to make up for his 26 years of silence. He doesn’t say words, but we all understand his “B-Mo talk” just fine. We know what sounds are happy sounds, impatient sounds, wanting sounds, angry sounds, scared sounds. We know his favorite music and foods, and he has definite preferences in people. We know him, and being known is part of what has helped Boris in becoming human over this past year.

I am so thank that God has given us the gift of our Borya. I get teary just thinking of all the years we missed, but I’m so thankful for all the years to come. He is our sunshine blessing and our whole family is changed by him. At some point along the journey we realized we would be devastated without him.

So today we will celebrate our little Beemchick with cookies and hugs. We will kiss him and tell him how much we love him. He might not understand the big deal, but we do. We can look back and see a life redeemed, and we are thankful.

We’ll love you forever, our precious Boris. ❤️

Here’s Boris this morning:

And here’s a video we made 4 years ago. It makes me smile when I watch it now. ☺️