How Are the Boys?

It’s been a while since I wrote an update about all our boys, right? I tried valiantly, for a while, to do the prayer team updates once a month, but I got a little burned out on that. It just ended up being too much. So…it kinda fizzled. Sorry about that. ๐Ÿคทโ€โ™€๏ธ I’ll make it up to you now with an update about each of the boys you love so much. As you’ll see below, they are just doing really, really well. We are thankful that right now all of our boys are happy, healthy, and thriving.

Vlad. Can you believe our Vlad is 21 years old now? He’s officially an adult, so he’s working hard at learning how an adult should behave and taking on more adult responsibilities. Vlad has taken on the responsibility of caring for the goats along with the chickens and I have to admit that I get a good chuckle watching him try to wrangle them into the yard at night. It is a sight to behold and probably the only time you will ever see Vlad angry at any living being. ๐Ÿ˜‚ He still goes to work at the electrical shop 3 days a week for about 4 hours and it’s going “okay”. There are good days, and not so good days. Vlad has the most wonderful, kind, patient boss, but it’s still a challenge for him to stay focused and motivated at work without mom or dad there to keep him in line ๐Ÿคฆโ€โ™€๏ธ. I hope he can keep his job, but he’s going to need to rise up to the challenge if he wants to keep working. We’re also searching for the balance of what kind of work can challenge Vlad so he can grow, but also work in which he can be successful. It’s all one big experiment.

Physically, Vlad is doing great. We decided to wait until next winter to being working on his orthodontics back in the US. Right now he is needs a lot of support from us and it just doesn’t seem like the right time for him to be so far away. We’ll see! He is generally happy and thriving. The other day he brought me his Christmas list that he wrote out himself. It was written in a mixture of Ukrainian and English and it just made me smile. He is such a joy and we are thankful that he is our son.

Boris. Our sweet Bmo is doing so great!! He really is growing and changing right now. He has started to communicate more and more of his needs and desires and I think that brings him joy- when we understand him. He mostly communicates by bringing us the thing he wants (like a cup when he wants a drink, or his blanket when he wants to sleep), but he also will occasionally use cards. It’s encouraging to see him trying to communicate. He’s also using the toilet more frequently with great success. We are all super happy about that!

Boris is still med-free and self-harm-free. We stopped giving him meds at the beginning of last year and I’m pretty sure he hasn’t hit himself even once. I’m still in awe of that miracle. I never dreamed he would have a life without hurting himself. He has been laughing a lot lately and is just generally really happy and content. The past couple of weeks he has been vocalizing more too! It’s so strange to hear consonant sounds coming from his mouth. What if someday he speaks!? ๐Ÿคฉ

Ruslan. Rus is still living with Luda and her son, Nazar, in an apartment in town and it is great. Luda is really the perfect person for Ruslan and they do so well together. She gives him a lot of independence and he is thriving in that. He is growing and maturing, emotionally, and is all around happy! Of course he still has his moments when trauma rears its ugly head, but he is growing in that. He is better able to handle unexpected changes in plans and negative emotions. The team has been working hard on that with him.

Ruslan loves meeting friends for coffee. When he goes to a cafe he always orders a “cappuccinko”. ๐Ÿ˜‚ He is so super social and I love watching him at church, how he walks up and greets all the different people he knows. Such a man! I’m really proud of Ruslan. He is making great strides and brings us a lot of joy and laughter. In the past my relationship with him has gone through some difficulties, but God has brought a lot of healing to my heart and I’m so thankful that I am in a place right now where I can just delight in Ruslan. He is a precious gift to our family and our team. ๐Ÿฅฐ

Anton. Antoshka is talking up a storm! In the past, Anton has really only spoken we have asked him to, when was repeating after us, or when he was angry. But right now he is in a season of exploding vocabulary! He is talking on his own accord and saying things we have never heard him say before. He’s singing a lot too, which usually is a sign with him that all is well. He’s in a really good place these days.

Back in the late summer, early fall he was really stressed and had lost some weight. He was looking pretty skinny and just not healthy, in general. But, over the last two months he has gained 12 pounds! Anton really shows us his emotional well-being through his body- his skin coloring, his weight. So a chubby Anton is a happy Anton. And that makes the rest of us happy too. ๐Ÿฅฐ Anton is taking more “responsibility” for Sasha and will even take things away from him if he knows Sasha is holding something he’s not allowed to have. The other day I was in the kitchen at the duplex and I heard Anton yell “Sashaaaaaaa!!!” I ran to the bathroom and Sasha was trying to climb into the (empty) bathtub while Anton was trying to stop him. Big brother was watching out for Sasha. ๐Ÿ˜Š This is huge because in the past Anton has really only ever seemed to care about Anton. The fact that he is watching Sasha and interacting with him like that is actually a big step for Anton. I’m proud. โค๏ธ

Sasha. Oh Sasha. He just brings us all so much joy! I remember back when we first decided to pursue guardianship of Sasha, we felt the Lord speak to us that he would bring joy to us all, and that has totally been true. His transition to family life has been the easiest of all the boys- by a mile. He was just ready! He is the cuddliest, sweetest man-child (๐Ÿ˜†) ever. Often Sasha is in content in his own world, but as time goes by he is more and more willing to engage. He responds to his name now (sometimes) and will follow some simple commands. Sasha loves to cuddle, sing, run, spin in circles, play with water bottles, and grab everything in sight that he’s not supposed to have. ๐Ÿ˜‰ He also really loves to eat, but I think that goes without saying. He is a 15 year old boy, after all and he’s growing like a weed. He’s about to grow out of all of his pants and has gained about 25lbs. since he came home to us in May. ๐Ÿ˜ฑ

Sasha has epilepsy and when he came to us he was on two medications: one he took twice a day and one he took three times a day. Now, six months later, he takes only one of those medications, twice a day. Woot! The neurologist is happy with the changes in Sasha’s brain activity and now that he is on less medication he is more interactive and alert throughout the day. Sleep is sometimes a bit hit or miss, but mostly fine. We are just so incredibly thankful that Sasha is in our family and we all adore him. He is a gift.

Thanks to everyone who prays for our boys. It is such a joy to share how they are developing and changing. Sometimes it feels like we struggle with the same things over and over, month after month, year after year, (because we do…๐Ÿ˜œ) but when I sit down and write out an update like this I marvel at how much they really have grown! These are not little children we are talking about! Besides Sasha, these are grown men, yet they still change and grow. They have so much to overcome every single day, but they do it. They allow us into their worlds and they let us love them. And then they love us back. I know I’ve said it a bazillion times, but I just can’t even begin to imagine our lives without our boys. They are God’s gifts to us.

BeLOVE[d]

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Vlad the Worker Man

When we adopted Vlad we really had no idea what to expect for his future. He could say a handful of words, but they were pretty difficult to understand. His behaviors were VERY institutional. He would screech and scream in public, he flapped his arms and made strange sounds. He had zero concept of appropriate social norms and personal space. He was a little bit like a wild animal, to be honest. But he was curious and he wanted to learn, so we started to teach him.ย 

The day we adopted Vlad

Over the past 6 years, Vlad has far exceeded anyone’s expectations. He can read and write in Ukrainian and he is fluent in Ukrainian and in English. He’s grown from a 15-year-old who wore size 8 boys’ clothes into a 21-year-old man who is taller than me and still growing! He is responsible and smart and never forgets a face. Vlad is a miracle. 

One of the dreams we have for our boys is that they would each grow into their full potential. That they would be allowed, in this space of healing and love, to fully become the men they were created to be. For Vlad, we saw his great potential for growth, and an impossible dream began to grow in our hearts. We began to dream that Vlad would one day have a job. 

Vlad is a hard worker around the house and once he understands a task, he completes it in a timely fashion. We knew he would make a great employee, but the barrier to employment was a cultural one. People like Vlad, with significant intellectual and physical disabilities do not work here in Ukraine, in general. I mean, it would be extremely rare to see someone like our boys out in about in public, let alone working at a public establishment. You just never ever see it! But still, we dreamed of a future in which Vlad could work and grow in his independence. 

Then we met Dima.ย Dima owns an electrical supply store in Zhytomyr. Jed met him through the construction of the duplex. They did some business together and discovered that they had mutual friends. Dima had even visited Romaniv once! Jed and Dima developed a friendship and Dima became interested in our work. He came out to visit a few times and began to more fully understand what we are doing here. Then he told us he wanted to help. Jed heard those words and decided to not hold back. ๐Ÿ˜‰ “You want to really help? Would you consider giving Vlad a job in your shop?” Without hesitation, Dima said that yes, he would be happy to give Vlad work. Oh.my.word. I’m not sure I’ve ever seen Vlad as happy as he was the day he learned he was going to be a “worker man”, as he put it. ๐Ÿ˜†

Vlad and Dima on his first day of work

On May 11th Vlad began to work in Dima’s shop. For the first couple of days Tanya, our special ed teacher, joined him to help coach him on appropriate behavior in the workplace, and to help Dima find the best tasks for Vlad. He started out working twice a week for a couple of hours at a time, and now works 3 days a week for 4 hours each day. He is one happy dude. Vlad mostly works in the back of the store, bringing inventory from storage to the front and helping with counting inventory and such. Dima told me this week that he has to check up to make sure Vlad doesn’t make mistakes, but that he has progressed a lot in his abilities over the past couple of months. They are so patient there and truly want to help Vlad to be successful in his work. It’s become a bit of a mission for the store employees. It seems like they all feel joy and pride in the sense of purpose the work brings to Vlad’s life.

Vlad at work

This month Vlad became an official, documented employee. I can’t emphasize enough what a miracle that is. It just doesn’t happen! We are so proud of Vlad and so thankful to Dima and his staff for making this happen for our guy. Vlad is growing in independence and maturity and having an occupation is a priceless gift in Vlad’s life.

Yesterday we celebrated Vlad’s 21st birthday. He’s an adult. He has a job, responsibility, a paycheck. I think back to the little tiny 15-year-old we adopted and marvel at all God has done. He has brought the right people into Vlad’s life at just the right time. We are so thankful and so proud.

An Idea I’m Excited About :)

A couple days ago I got the best message from an American couple that live in Kyiv. I met them briefly on a trip to Ukraine before we moved here. Throughout the years they have followed the work and sent encouraging notes here and there to let us know that they pray for us. (Those kinds of notes are the best notes, by the way)

Last winter when it all hit the fan and we had to immediately remove Anton from our house, they let me know that they had been praying for Anton every night, and would continue to do so. In that terrible time, it was such a giant encouragement to hear that they were praying faithfully for our precious guy.

That brings us to a couple of days ago when I got another message from the couple letting us know that through all these months they have continued to pray for Anton every night. I was so shocked to read that! In that moment I was able to let them know that actually, Anton has really been struggling the past couple of weeks. They were thankful to know so they could understand better how to pray for him. It made me wish I had been sharing more about Anton with them all along.

Then I had an idea!

As we’ve been planning our transition off of social media, we have been trying to think of ways for the Wide Awake community to stay engaged. I love the “back and forth” we have on social media and I really love that so many of you feel that you truly “know” our boys. That is a beautiful thing, to know our boys have cheerleaders in their corner that rejoice with us in every little victory and cry with us when times are tough. I don’t want to lose that part of community. It is an important piece at the heart of this work: to know and be known.

I would love to gather like-minded people together into groups that would celebrate, cheer on, pray for, and share the beauty of each of our boys. I’m thinking we need a “Team Boris”, “Team Ruslan”, “Team Anton” and “Team Vlad”. Then as more boys are added to our Wide Awake Family, we can gather teams for them as well. We probably need to gather a “Team Sasha” too, seeing as how Jed will soon be his guardian. Woot!

What does it mean to join a team?

  • We will send each team member a postcard of their boy that they can put on their fridge as a daily reminder of the precious life across the ocean.
  • I will email the teams each month with an update on their boy, prayer points and fun videos and pictures.
  • If we’re going through a rough patch I can let the team know and they can pray, support and encourage.
  • If there is a big gain for one of our boys, the team will know and be able to celebrate with us. I know it would mean a lot to our team here in Ukraine to hear that support and love from others for the boys that mean so much to them.
  • I even had an idea for a live chat with the team and their boy every so often…now that sounds fun!
  • Edited to add: I will still give regular updates about all the boys on the blog and in the weekly emails. The “teams” are more about targeted info about that specific boy. You can totally join more than one team!

What do you think? Wanna join a team? We would absolutely love for you to join us in caring for our boys in this way.

How to join?

  • Send me a message and let me know which team you would like to join.
  • Make sure I have your email address so I can send you the monthly updates.
  • If you would like us to send you a postcard, please send us your mailing address as well.

I’m so excited to see what comes of this. This idea was prompted because you all have shown so much love for our boys over the years. Thank you for loving them and for seeing them. Thank you for looking past the diagnoses and seeing the people. I can’t wait to keep sharing them with you and I really can’t wait till we have even more boys to introduce!

Wide Awake is leaving social media on Monday, October 12. But that doesn’t have to be goodbye! We are sending weekly email digests, so all the goodness you usually see on social media lands right in your inbox. Sign up below to get the weekly emails. I promise not to spam you. ๐Ÿ™‚

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Wide Awake Summer

Tomorrow a big chunk of the Wide Awake Family heads to the US! We’re leavin’ on a jet plane… ๐Ÿ™‚

It has been two years since our last visit, so it’s time. We try to visit Oregon every two years to see family, meet with our Board of Directors face to face, and spend time with our friends and supporters in the Pacific Northwest.

Another big purpose of this trip is to do reconstructive surgery on Vladik’s feet. We had planned to do the surgery when we were last in the US, but at that time Vladik was not ready for such a major procedure. He’ll be wheelchair bound for 8 weeks after the surgery, and at that time he didn’t have the understanding or emotional maturity to not be devastated by that. Now he is so much more mature in every way. He is ready and wants the surgery. He is also getting taller and heavier and walking is getting more and more painful for him. We just need to bite the bullet and get ‘er done.

I (Kim) leave for the US tomorrow with 5 of the 6 kids. We’ll get Vladik’s pre-op stuff done, and Jed will follow in June. Ezra will stay in Ukraine this month with Jed to help him care for Boris. At the end of May Jed and Ezra will go to South Africa for the World Congress for Occupational Therapy. Jed and Olya, our friend and OT, will present the interns’ work at Romaniv to the Congress. More on that in a later post!

Evie's going to miss her brother this month!

Evie’s going to miss her big brother this month!ย 

Although we successfully got Boris a visitor visa to the US, we have decided the best thing for Boris is to stay home at the Homestead. A trip of such magnitude would be very difficult for him. He thrives on routine and familiar surroundings, and there will be nothing routine or familiar about our summer in the US. It is so hard for us to leave him. I shed quite a few tears over it, knowing that he won’t fully understand where we all went. ๐Ÿ™ But at the same, I realize that it would not be kind to bring him along. Our hearts are officially at home in two places and there’s just nothing easy about that. Seriozha (Jed’s assistant) and his wife, Romana, will live at the Homestead with Boris for the summer so he can be in his home with all his favorite things. If you could pray for them for wisdom in caring for Boris, and also for peace in Boris’ heart while we are away, that would be so great. Thank you!

Side note: Boris’ visa is a 10-year multiple entry visa, so maybe we can bring him with us in a couple years when we visit again!

So, that’s the Wide Awake summer plans. While we are traveling to and fro the team and interns will continue to visit the Boys at the institution regularly, just like always. The construction crew will work on developing the new land at the Homestead and preparing it for the next homes to be built, and Boris will be safe at home with people who love him. It’s awesome to know all the work will continue while we’re away. That leaves us the ability to focus on getting Vladik healthy, the opportunity to rest with family, the chance to connect with sponsors and the time to dream and plan with our Board.

Gettin’ the garden ready for planting

Thank you all for your incredible love and support of our family and this work. Knowing that people are praying and sharing and giving of their hearts and finances makes all of this possible.

Seventeen.

Today our Vladik is 17 years old. SEVENTEEN! What in the world?

He has grown so much in every way over this past year. Soon we’ll celebrate 2 years home for our boy and I’m amazed at what a different person he has become.

He is daring and funny and creative and talkative.

If anyone in our family loses anything or is looking for any item they know they just need to go ask Vlad. He knows where everything is.

Vladik speaks more Ukrainian than English these days. He is fluent in both, can understand and speak both, but his go-to language for speaking is Ukrainian. I’m sure our home sounds funny to outsiders. The rest of us speak English at home, but then Vladik is always inserting his funny version of “Ukrainienglish”. I don’t even notice it anymore and we can understand everything he says, so it’s no problem for us. It’s only really a problem when he is speaking to anyone outside of our family that hasn’t spent much time with him. Then our family becomes translators. I can say “Speak English” or “Speak Ukrainian” (depending on the audience) a million times over, but Vladik is going to say what he wants to say, how he wants to say it. He’s stubborn like that. ๐Ÿ˜‰

His favorite foods have stayed the same since Day 1. His birthday food requests were “kasha” for breakfast (Cream of Wheat) and borscht with mashed potatoes for dinner. Some things never change. Hehe.

Speaking of food, in true teenage boy form, he is going to eat us out of house and home. Vladik eats more than any other person in our family- by far. He is a bottomless pit. BOTTOMLESS.

He was sure that when he turned 17 he would be able to drive a car. Sorry bud. Not happening.

Moving to the village has been the best thing ever for Vladik. He’ll spend hours outside building things with spare wood he finds around the property. He loves to ride his bike up and down our road, giving rides to the little neighbors.

Emotionally he is growing and changing as well. ย We have a ways to go there, and will probably always be working toward healing, but he is coming along bit by bit. Vladik is starting to exert more of his will, arguing a bit and back talking a little, but those are good things! Annoying in the moment, yes (grrrr), but actually good. He isn’t so super eager to please out of fear or insecurity. He knows his place in our family and isn’t afraid to speak up. Those are big changes.

Vladik is so loved by our community here. It blesses our hearts. Our church family adores him. The neighbor kids in the village accepted him from the moment we moved in. We’ll have a party for him on Saturday and his guest list is super long. He knows he’s a popular dude.

Overall Vladik is happy and thriving. He fits perfectly into our family and we love him dearly. His journey, our journey has not been easy. We have many hard times and parenting Vladik takes a ton of effort. But, in general, he has transitioned into life in our family better than we ever could have imagined. He is just so smart and wonderful. I can’t even imagine him still living at Romaniv. It’s absurd! His life is so full!

I can’t wait to give the same opportunity to many of his friends who were left behind. I can’t wait to share blogs about their birthdays and Gotcha Day anniversaries. Soon, soon, soon. ๐Ÿ™‚

But today we celebrate our boy and the wonderful gift that he is to us.

We love you Vladislav Christopher. Happy Birthday!!